Showing posts with label Health Literacy Coalition of NJ. Show all posts
Showing posts with label Health Literacy Coalition of NJ. Show all posts

Wednesday, July 13, 2011

From A to Z: Literacy Treasures



We posted about this story on our Facebook wall, but I wanted to share this with all my followers as well. First let me say that I am totally guilty of not always reading to my kids at night. Lets face it, sometimes we parents are so tired we can barely keep standing. Even before reading this story I had made a secret promise to myself that I would fight the urge to just put my kids to bed and I will read them at least one story every night. No matter what.
After reading this story I am more committed to that than ever. I should never ever take for granted the fact that I can read, and therefore can read to my children.
Please read the story and get inspired yourself!

A new learning center is opening in Massachusetts. A one stop shop for all adult learning needs. We need more of these all over the US.

"Lives will change as a result of this building," said Robert Pura, president of Greenfield Community College. "Lives will change for the better."

Read the story on gazettenet.com



This print for sale on Etsy:



Introducing HONEY! Bringing awareness about adult literacy. Oh and she is a dog!


W stands for WOW. Please read this blog post, written by an MD, on the NY Times website. I literally said OMG when I read it.



My husband and I recently decided he needs to be wearing some sort of medic alert jewelry. He told me he would be the least annoyed with a dog tag necklace. Here is the one I found on Etsy. I think anyone who suffers from a medical issue like seizures, or diabetes or such should wear something like this. But how much more important for someone who can't speak the language. If they are taken to an ER, they show their bracelet, the team automatically knows they suffer from seizures and are on this medicine for them.


Understanding prescriptions and medicine labels is a huge part of health literacy. It became very clear how big an issue, after the tornadoes in Joplin.


Good News! NJ Health Literacy Coalition now has a website! I will be adding it to my "My Favorites Internet Trips" page. Check it out!

Thursday, February 17, 2011

Literacy is NOT Defined as Reading





A common misconception among most people is that just because you can read you are literate. Not true. What if you don't understand what you are reading?






What do you think when you read the word "Hypertension"? Of course if you are a doctor or nurse, or actually suffer from this and have learned what it is you would know. But what if you have never heard this term before, you go to your doctor, and they say, "well you are suffering from hypertension so I want you to take this prescription and come back in a month." If you don't specifically ask what it means what would you think? I am too tense maybe?


A study done by the CDC (Centers for Disease Control) back in 1996 showed that patients with low literacy thought the term "high tension" (what they used to call hypertension) meant "a disease of the nerves caused by stress, worry, or an anxious personality." The book Explaining Illness: research, theory, and strategies, written by Bryan B. Whaley, says that these patients "believed the way to treat "high pretension" was to rest and relax-to take it easy."


I looked up the word and it means, High Blood Pressure. I don't even know what that means. The medical websites say it is high tension in the arteries. Well what does that even mean? There are a lot of words that I did not understand when I tried to look it up. Systolic, Diastolic, oh and then there was pre-hypertension.


Basically after wading through all those terms I got to the heart of the matter, and basically if you have a "High Blood Pressure" (what is high anyway), you could die from it.


So if an adult, with only a 3rd or 4th grade reading level, or an immigrant who does not understand the language very well and is maybe somewhat intimidated by the whole health care system was told they have "hypertension" with no other explanation; would they know what it meant? Would they know where to go to find out? What is the likelihood that they will do what is required to take care of it?


Here is another example. You walk into a doctor's office and the receptionist hands you the "Privacy Statement" that you are required to sign. If you are like me you just sign it without really thinking about it, because let's face it I am there to see the doctor and whatever I need to do to get into that room faster and get out and on with my life I am going to do.


But I challenge you to actually read it the next time, and tell me honestly if you recognize all of the words and acronyms that are used throughout. Here is an excerpt taken from a local doctor's privacy statement:





Okay, because I am pretty well read and went to college and was forced at college to learn most of the words in this paragraph, I think I can easily figure out the gist of it. But what about an adult that only reads at a 3rd grade level. Do you think they would understand this paragraph? The word "Pursuant" for example. Or "Provision" or "Disclosure".


These privacy statements aren't life threatening, and they aren't meant to hurt us as patients, but they are confusing and somewhat intimidating in nature. Isn't that how most forms are at the doctor's office, or hospital, or clinic?


I went to an in-service on Tuesday at the Plainfield Public Library. It was titled: "What Adult Literacy Tutors can do to Increase Health Literacy." This workshop was taught by a well known expert in the field of Health Literacy. She is one of the founders of the Health Coalition of NJ and has given many workshops to tutors, students, and even health care professionals.

First question: What is Health Literacy? Well Health Literacy is defined many different ways actually, and has changed throughout the years. One definition put forth by The Centre for Literacy of Quebec states:
  • Health literacy allows the public and personnel working in all health-related contexts to find, understand, evaluate, communicate and use information.
  • Health literacy is the use of a wide range of skills that improve the ability of people to act on information in order to live healthier lives.
  • These skills include reading, writing, listening, speaking, numeracy, and critical analysis, as well as communication and interaction skills.
All these skills are required to be able to understand health and wellness: Reading, Writing, Speaking, Numeracy, and Critical Analysis.

Honestly it never occurred to me how really cut off low literate people are from really understanding health care. I am thankful for this workshop, for opening my eyes to the facts.

I learned that according to the 2003 National Assessment of Adult Literacy that 88% of the country is below the proficient level in health literacy. To me that is way too high and it is so obvious that there is a clear disconnect between how the information is being given to us and how it is received.

So what can be done? The workshop presenter gave us tutors, tips and ideas, and resources to use to help introduce the topic into our tutoring. But she also mentioned that it is a two way street. She feels, and I agree, that the health care providers need to learn to make it simple. That doesn't mean dumb it down, it means make it easier for everyone to understand the important information that we as patients need to know. And maybe doctor's and even nurses could take a little extra time to make sure their patients really understand and not just assume that they do.

My mother is a nurse and I have an aunt who is a doctor, and I have many friends who are in medical professions. I love these people and have learned many important things from them, and because of them I do not feel intimidated to ask questions. But I know many people still are, and I challenge those who work in this profession to learn to look out for these patients. In the mean time I will do my best to help my student with whatever health literacy needs she has or wants.

If you would like more information about Health Literacy in NJ, please click here: